1.45pm Cf Clinic time this is pretty standard I do this ever 3 months anyways. However during clinic I needed to run off and do my Bike at Box test at 2pm.
2PM off to my Bike and Box Test
I will start of with Box Test, why is it called a box test I hear you ask? well because this particular test is in a huge clear box that you are enclosed into with a couth piece fir you to breath into (and before you ask yes it gets very very warm in this box as it pretty much vacuum sealed for accurate results). During the test you are asked to do many different breathing exercises on the mouth piece, testing for various different levels some of these include.
Fev1 (Forced expiratory volume measures shows the amount of air a person can forcefully exhale in one second)
FVC (Forced Volume Capcatity this is total amount of air forcibly exhaled throughout the test)
They also test for airway resistance levels and I am pretty sure there is another one but I forget.
Anyways this test can take up to 40 minutes depending on how long the machinery takes to set up and number of retries you may need to do.
2.15pmish The bike test ah yes my old nemesis, basically a fitness test with a few medical tweeks. During this test I have about 10 heart rate monitor cables attached to me on various part of my body from my ears to lower chest. I then hop on the bike and I am attached to a heart rate monitor and given a mouth piece that fits into my mouth to keep track of breaths during exercise. Attached and ready to go, the first 5 minutes I have to sit and do nothing so the examiner can gain a base line to work from beat per minute etc. The the hard work begins! I have to pedal for as long as I can keeping the RPM at 70 as each minute passes the bikes level of resistance is increased and my job is to keep going as long as I can.
Sometimes I am also requested to go for a chest Xray to keep my records updated however this time around it wasn’t requested one less thing too do yey.
3.30pm Back to the Cf Clinic I am getting tired now of course but I know after this I can go home yey! During this time I am given a room to avoid contact with other Cf patients also visiting for clinic or reviews.
During clinic I see many different faces my Cystic fibrosis team is large and faces and names can be hard to keep up with. Usually I see a team leader from each department and we discuss what news/difficulties and or updates I have. This clinic was a big one as it was annual review day so I got to see everyone! There quite a few of them so I will make there indiviual breakdowns short.
Dietitian: Usually takes my weight first then does all her mathematics sum to figure out my weight in stone and pounds and what my BMI currently is. Annual review day we look into my daily calories intake and Creon intake to make sure I am taking the correct dosage to compensate the amount I am eating.
Physiotherapist: Listens to my chest and ask how things have been chest wise she reviews my physiotherapy exercises and routines, alongside general fitness and gym attendance. Also keeping track of replacing inhaled medication equipment.
Researcher: The researcher is a relativity new part of my Cf team so far it usually been asking for some form of participation in a new study or research.
Psychologist: A vital part of the Cf team there on call whenever she genrally sees to the over alll mental health of all CF patients as being born nd living with a chronic illness can be challenging and extra support is needed..
Nurse: The nurses are fantastic they are usally the ones to takes bloods, sputums samples and pulse The also pass aong any concerns you may have to the doctors and keeps everyone pretty much on time and updated.
Doctor: The doctor always comes in last and pretty much reviews your overall health from the knowledge built around all the other cf teams opinions and examinations, this is the time I can ask questions, share health concerns and be involved in the progression of my health care.
5pm After all that I can go home yeyy! off to the bus stop I go
6pm Finally I am home and can rest
My annual review tests all came back positive this years results are;
Lung function 109% up a massive 8% from last year.
Weight Gained 2.5kg aka 5 pounds
Vital Lung Capacity a massive 116
A great result!